Human Growth Foundation Skeletal Dysplasia Family Day
Human Growth Foundation Skeletal Dysplasia Family Day
Location
Date
Description
The Human Growth Foundation (HGF) invites you to a Family Day dedicated to individuals and families navigating life with skeletal dysplasia. This event is built with you in mind — the parents, caregivers, and loved ones who advocate, guide, and stand beside individuals with rare bone conditions every day.
This free program offers a s space to learn, connect, and gain clarity on the transition from pediatric to adult care — a stage that many families find both exciting and overwhelming.
What Parents and Caregivers Can Expect:
- Guidance from leading experts on managing medical, emotional, and practical needs during the transition to adulthood
- Conversations that address real-life challenges families face
- Opportunities to meet other parents and caregivers who understand your journey
- A supportive environment where your questions, concerns, and experiences are valued
All attendees will also receive complimentary passes to SEA LIFE London Aquarium, offering a fun family outing after the event.
With Gratitude,
Venue
Human Growth Foundation Park Plaza County Hall, 1 Addington Street London SE1 7RY, Millennium & Battersea Suite | Floor: 1, SE1 7RY Lower Hutt
FAQ
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I have not received my Human Growth Foundation Skeletal Dysplasia Family Day ticket via email. What should I do?
The first thing to do is check your spam/junk filters and inboxes. Your Human Growth Foundation Skeletal Dysplasia Family Day tickets were sent as an attachment and can be thought of as spam by some email services. Alternatively, you can always find your Human Growth Foundation Skeletal Dysplasia Family Day tickets in your Billetto account that you can access in the browsers or the dedicated Billetto app. For more help with this, read here.
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I wish to cancel my Human Growth Foundation Skeletal Dysplasia Family Day ticket and receive a refund. What should I do?
The approval of refunds is entirely at the event organiser’s discretion, and you should get in contact with the event organiser to discuss what options are available to you. To get in touch with the event organiser, simply reply to your order confirmation email or use the "Contact organiser" form on the organiser's profile. For more help with this, read here.
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I have registered on the Human Growth Foundation Skeletal Dysplasia Family Day waiting list, what happens now?
If more tickets become available you will be notified (by email) amongst others who have joined the list. Purchasing is on a first-come first-serve basis. For more information, read here.
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Where do I find a link to an online event?
Check your order confirmation page or order confirmation email. Usually, the organiser of the event provides the details in the order confirmation email or they might send you a follow-up email with a link to their online event. You might also want to read the event description on Billetto where an event organiser should describe how to join the Human Growth Foundation Skeletal Dysplasia Family Day event online. For more information on this, read here.
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What is refund protection and why would I need it?
Refund Protection provides you with the assurance that if unforeseen and unavoidable circumstances interfere with your ability to attend an event you can claim a refund. For more information on this, read here.
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